Dr. Kishnani & Gabriel Meet! From the moment I began to understand what Pompe Disease is and what form of it my son has, I've protested the term "Late Onset Pompe Disease." While I'm no doctor, I know the effect words have on people. "Late."...read more
This summer, Gabriel turned two years old! I’m certain he was somehow clued into the guidelines and expectations of what comes with that number as he almost immediately began saying “No!” and “Miey!” (mine) with the gusto, ownership and dedication of a Vaudevillian....read more
I try not to take it for granted that, as journalists, people put their most precious stories into our hands in the most vulnerable moments with trust that when our fingers part those stories will be told in the way they hope and intend. I was on the proverbial other...read more
I spy, with my little blue eyes... an amazing community full of love, hope, concern and cheers. Because of you - whether it was kind words, prayers, donations of time or money - we are able to send this check from Gabriel's Gale to Duke University for Pompe...read more
Before having our third baby, I decided to be much looser about motherhood. Not to worry so much. I may not have decided as much as actually given way to circumstances: 3 kids 4 and under and only two parents. Somehow, maybe I knew the room for my heightened...read more
A year and some change have passed since we traveled to North Carolina to introduce Gabriel to the fine folks at Duke University, where they are doing such amazing things for people with Pompe.read more
I've learned many things as a mom of 3 in 4 years' time: You can never have too much milk, too much toilet paper or too much faith. The latter has been tested for us this year. Deep breath. Gabriel is one year old now. What a year it's been. We're grateful...read more
A HUGE SUCCESS -- Thanks to you!
Today is International Pompe Day and, while there is so much sadness in the world right now, there is so much hope!
It is with tremendous gratitude and humility that I, on behalf of the Gabriel’s Gale board, thank all of you for your kindness and contributions toward our 2019 Gabriel’s Gale Fundraiser.
Our goal was to raise $15,000.00. Guess what? Thanks to you, we did it! Incredible. This will allow us to write a $10,000 check to Duke Health to forward Dr. Kishnani and her tam’s work, give some financial support to a local Pompe Family (heading to Duke this year!) and have some money for the foundation’s expenses.
While many of you could not make it to our fundraiser, you helped make it a success by your donations. Every dollar (and Euro!) counts!
We are forever indebted to our emcee Kris Ketz. Huge thanks to those who provided our venue & food Brett Euritt Zarda Bar-B-Q & Catering Co. @panerabread as well as Hy-Vee for flowers & the amazing people who donated to our silent auction. Thank you Dr. Heese Children's Mercy for speaking & Dr. Kishani from Duke Health for sending a video. Thank you Magician Todd Lamanske for truly making us believe in magic! Endless thanks to our incredible board including Talia Evans Becca Silverman and Heather Bokelkamp. No value can be put on their hard work and - most important - belief in our mission.
Finally - thank you to the many of you who donated even if you couldn't come & for those of you who trusted us enough to buy a ticket and become part of the Force to Fight Pompe!