Thank you so much for taking the time to visit our page, learn about Pompe and what we are planning to do to make the lives of people living with this often difficult and at times unbearable disease longer and better. Donating money to the fine folks at Duke University Hospital and other hospitals working to prolong the lives of Pompe patients is one way to help. We understand not everyone is in a position to give. That is why we want to make sure you know that learning about this disease, talking to people about it, pushing for Newborn Screening for Pompe in all fifty states is just as important, if not more. The fact you care enough to be here now means the world.


Cody and Donna
Gabriel’s Daddy & Mama