Feb 9, 2018 | Uncategorized
A year and some change have passed since we traveled to North Carolina to introduce Gabriel to the fine folks at Duke University, where they are doing such amazing things for people with Pompe. As I write this, I reflect on a letter I sent family members when we...
Feb 9, 2018 | Uncategorized
I’ve learned many things as a mom of 3 in 4 years’ time: You can never have too much milk, too much toilet paper or too much faith. The latter has been tested for us this year. Deep breath. Gabriel is one year old now. What a year it’s been....
